日本財団 図書館

共通ヘッダを読みとばす


Top > 自然科学 > 医学.薬学 > 成果物情報

FOR THE ELIMINATION OF LEPROSY NO.11 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)

 事業名 ハンセン病対策啓発活動
 団体名 笹川保健財団  


HUMAN STORIES
A Quest for Dignity
Bernard K. Punikai'a has spent a lifetime fighting for human rights.
 
Bernard K. Punikai'a was born in Honolulu, Hawaii. He was diagnosed with leprosy at the age of six, taken from his mother, and later forcibly isolated on the remote Kalaupapa peninsula, island of Molokai, in 1942.
 From an early age, he was involved with politics at Kalaupapa and was a member of the Citizen's Committee that abolished Hawaii's outdated isolation law in 1969. He was a leader in the battle to prevent the state government from closing down Hale Mohalu, the residential treatment facility near Honolulu that had provided an alternative to living at Kalaupapa since 1949.
 When Hale Mohalu was ultimately bulldozed in 1978, Bernard was a leader in creating the Coalition for Specialized Housing, which developed affordable housing on the Hale Mohalu site for senior citizens and persons with disabilities.
 Bernard gave the keynote address at the Opening Dinner Reception for the Quest for Dignity Exhibit, when it was launched at the United Nations in 1997.
 It was Bernard who coined the phrase “Quest for Dignity”, which has come to symbolize worldwide efforts aimed at reaffirming the human rights and humanity of all those who have had leprosy.
 An accomplished composer and musician, Bernard has written many songs including “Out of the Darkness”, which was composed specifically for the Opening of the Quest for Dignity exhibit at the UN.
 In 2000, Bernard was elected as IDEA's President for International Advocacy*, a position he still holds. In 2002, Hawaii Governor Ben Cayetano declared August 29 ― Bernard's birthday ― as “Bernard K. Punikai'a Day” in honor of his lifetime of achievements and contributions to society.
 
Bernard outside the Honolulu Academy of Arts.
Photo by Pamela Parlapiano
 
Speaking up has been a way of life for me. To be silent is to be part of the oppression.
 “When I reflect back on my early life, going back to age four or five, I can see that a pattern had been established whereby some people would describe me as being a renegade. One of the things that really gets to me is fairness and fairness in how you treat people. I have always been concerned about fairness, rights, civil rights, human rights, how people treat other human beings. I like to think that whenever I notice any kind of injustice or unfairness, that I will not be silent. Speaking up has been a way of life for me. To be silent is to be part of the oppression.
 “Anytime anyone is diagnosed with this disease, they are traumatized because they are burdened with 3,000 years of stigma, fear and rejection. Your belief is your reality and all too often, your beliefs about the disease stem from what you've heard about the stigma, fear and rejection. We can no longer sit by and watch people's identities and people's lives be destroyed by the stigma associated with this disease. We are your sons, daughters, fathers, mothers, brothers, sisters, grandparents. We are truck drivers, poets, teachers, politicians, musicians, artists and so much more.
 We refuse to allow people to define ourselves, our humanity, by a disease.”
― Bernard K. Punikai'a
 

QUOTE:Bernard K. Punikai'a
“We want to be part of the process.... To be in a position to help others as well as ourselves.”
Quest for Dignity
 
Leprosy LEXICON
● Disability
Leprosy impairs the body's peripheral nerves, and can lead to disability if not treated. WHO uses a grading system to measure levels of disability (0 to 2) at six sites (eyes, hands, and feet). These are used to assess a patient's overall disability grade. Disability in new patients is normally only reported at Grade 2 levels. Lower rates of disability are a sign of early detection.
 
* The International Association for Dignity, Integration and Economic Advancement (IDEA) is the first organization whose leadership is largely made up of people who have been affected by leprosy.
 
 
PDF:78KB(3/8ページ)
 
BACK CONTENTS NEXT





サイトに関するご意見・ご質問・お問合せ   サイトマップ   個人情報保護

日本財団会長笹川陽平ブログはこちら



ランキング
注目度とは?
成果物アクセスランキング
4,665位
(31,571成果物中)

成果物アクセス数
837

集計期間:成果物公開〜現在
更新日: 2019年12月7日

関連する他の成果物

1.FOR THE ELIMINATION OF LEPROSY NO.24 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
2.FOR THE ELIMINATION OF LEPROSY NO.13 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
3.FOR THE ELIMINATION OF LEPROSY NO.14 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
4.FOR THE ELIMINATION OF LEPROSY NO.15 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
5.FOR THE ELIMINATION OF LEPROSY NO.17 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
6.FOR THE ELIMINATION OF LEPROSY NO.18 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
7.FOR THE ELIMINATION OF LEPROSY NO.19 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
8.FOR THE ELIMINATION OF LEPROSY NO.23 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
9.FOR THE ELIMINATION OF LEPROSY NO.12 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
10.FOR THE ELIMINATION OF LEPROSY NO.10 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
11.FOR THE ELIMINATION OF LEPROSY NO.16 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
12.FOR THE ELIMINATION OF LEPROSY NO.1 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
13.FOR THE ELIMINATION OF LEPROSY NO.2 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
14.FOR THE ELIMINATION OF LEPROSY NO.22 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
15.FOR THE ELIMINATION OF LEPROSY NO.26 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
16.FOR THE ELIMINATION OF LEPROSY NO.20 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
17.FOR THE ELIMINATION OF LEPROSY NO.25 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
18.FOR THE ELIMINATION OF LEPROSY NO.21 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
19.FOR THE ELIMINATION OF LEPROSY NO.4 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
20.FOR THE ELIMINATION OF LEPROSY NO.5 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
21.FOR THE ELIMINATION OF LEPROSY NO.6 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
22.FOR THE ELIMINATION OF LEPROSY NO.7 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
23.FOR THE ELIMINATION OF LEPROSY NO.8 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
24.FOR THE ELIMINATION OF LEPROSY NO.3 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
25.FOR THE ELIMINATION OF LEPROSY NO.9 (WHO SPECIAL AMBASSADOR'S NEWSLETTER)
26.Report of Cooperation Projects for Parasitic Diseases
  [ 同じカテゴリの成果物 ]


アンケートにご協力
御願いします

この成果物は
お役に立ちましたか?


とても役に立った
まあまあ
普通
いまいち
全く役に立たなかった


この成果物をどのような
目的でご覧になりましたか?


レポート等の作成の
参考資料として
研究の一助として
関係者として参照した
興味があったので
間違って辿り着いただけ


ご意見・ご感想

ここで入力されたご質問・資料請求には、ご回答できません。






その他・お問い合わせ
ご質問は こちら から